About The Ehlers-Danlos Society
The Ehlers-Danlos Society is the global nonprofit organization dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.
Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do.
Many around the world face a diagnostic odyssey: years, sometimes lifetimes, fighting for recognition, diagnosis, and care. We are working towards a time when geography and wealth no longer determine your quality of life. Education is needed to advance early diagnosis and intervention—and post-diagnosis, patients urgently need support and guidance. We want to give hope to all those living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders. Visit ehlers-danlos.com
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